Rains Family Story
Just like any first time parents, or expecting parents for that matter - my husband, Alex, and I were anxiously awaiting our anatomy ultrasound. We received one 3 weeks prior to learn we were expecting our baby girl, Bentley Tate, so we had no reason to expect the news we were about to hear.
On November 2nd, 2016 at 19 weeks gestation, we learned our little baby had been diagnosed with Gastroschisis – an abdominal wall imperfection meaning Bentley would be born with potentially small and/or large intestines as well as other organs outside of her body. It was terrifying and heartbreaking to hear that anything was wrong with our baby. We loved her so much already. It was unbelievable news. I was angry, frustrated, and couldn’t figure out why this was happening to us. My pregnancy didn’t turn out to be the pregnancy I ever imagined to have. It consisted of multiple doctors’ appointments, monthly turning to weekly ultrasounds, as well as conducting numerous non-stress tests. I was told on average a baby born with Gastroschisis spends about four weeks in the NICU. I prayed for her to be healthy, healed, and home in three weeks continuously.
Two and a half months later, Miss Bentley Tate Rains made her surprise arrival on February 23rd, 2017. I was 35 weeks pregnant, contracting every 2-3 minutes, and she was going into distress. I was aware that our situation was daunting, however, I had peace of mind. I knew in my heart that even though my Bentley was being born “inside-out,” as some Gastroschisis parents say, everything was going to be okay.
Bentley was born at 5:55pm and I was able to meet her at 9:10pm that night. She was born with her small and large intestines, as well as her bladder, outside of her body. Whenever I saw her, she was laying in her bed sleeping with a silo, which was holding her intestines up as gravity pulled them back down into her little five-pound body day by day. She had too much intestines out that they couldn’t close her belly right after birth.
Day five of her life was the scariest of ours to date. She underwent surgery where the pediatric surgeons at UK Healthcare closed up her belly and inserted a broviac central line. At this point, we had no idea how long she would be in the hospital. We could be looking at weeks or we could be looking at months. On day six we held our baby girl for the very first time, and on day eight we started feeds.
They pushed Bentley; and Bentley kept pushing herself and impressed everyone. We were still told to expect setbacks with her feedings; nevertheless, I continued to pray that she would be home within three weeks. On day 19 of Bentley’s life, March 13th, 2017, we were able to go home! It was every bit amazing, sweet, and scary! Today Bentley is healthy, and hasn’t had any issues since we left the hospital. She is a true testimony, and my miracle. I am beyond thankful to all of the doctors and nurses that became family to us during our stay, as well as the March of Dimes to let us share our story. We are proud to be an Ambassador Family for the 2018 Signature Chefs Auction. It truly is amazing what happens when you let go and let God work. Miracles happen.